Ronny Allan
@RonnyAllan1
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6,479
Following
4,222
Media
6,291
Statuses
26,794
Neuroendocrine Cancer Patient Leader, 3 x WEGO Health (now @HealthUnion ) Award Winner, Brit/Scot, #Veteran , opinions mine.
Joined October 2013
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Pinned Tweet
The Classification, Grading and Staging of Neuroendocrine Neoplasms (incorporating WHO 2022 classification changes)
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9
15
8 years since diagnosis of incurable and metastatic
#NeuroendocrineCancer
At age 63, I climb up big hills just to piss my cancer off.
#LetsTalkAboutNETs
#NETCancerDay
@NETCancerBlog
23
93
268
#NeuroendocrineCancer
would love you to ignore this post. Don't let it win so please RT. via
@RonnyAllan1
63
306
194
"Jockdown". This means that English taxpayers pay for
@NicolaSturgeon
's desire to be different from England. It's almost embarrassing for me to be Scottish at this present time.
11
52
159
@tim_cook
RIP
#SteveJobs
taken by
#neuroendocrinecancer
, a very underfunded disease. Be great if you could champion our cause in his name?
6
29
83
still shell-shocked but proud to have won the 2018
@wegohealth
awards for Best in Show Blog
#WEGOHealthAwards
#NeuroendocrineCancer
@NETCancerBlog
16
11
47
2
27
43
Proud to be an Independent
#NeuroendocrineCancer
Advocate and Voice via my award winning site at and associated
#socialmedia
channels. Thanks to my thousands of supporters worldwide - we are on course for 1,000,000 blog views
2
21
40
Did you know that in Australia,
#NeuroendocrineCancer
is now the 7th most common cancer this year after breast, prostate, melanoma, colorectal, lung and non-Hodgkin's lymphoma.? See here (section entitled Meanwhile in Australia ....)
2
16
36
BREAKING NEWS delighted to announce my
#NeuroendocrineCancer
community has won the 2016
@wegohealth
Best in Show: Community award
#HAAwards
2
17
36
11 years – I’m still here! was my 400th post on and I was amazed at your response to the attached tweet - many thanks 🥰🙏
#NeuroendocrineCancer
#WEGOHealthAwards
2
5
35
I just wonder why actress Olivia Williams is not an ambassador for the
@netpatientfound
, the cancer she actually has.
#neuroendocrinecancer
#VIPoma
8
23
32
This article has 11,000 Facebook shares so far, not bad for a wee Scottish guy with a computer.
#NeuroendocrineCancer
#WorldNETDay
#notjustanotherpatient
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17
29
Jimmy Buffett 1946-2023 – Neuroendocrine Carcinoma (Merkel Cell)
#NeuroendocrineCancer
#merkelcell
#jimmybuffett
#margaritaville
0
15
30
For the next 24 hours depending on where you are, it's
#NationalCancerSurvivorsDay
(7th June 2020). It's a celebration of life and if you're reading this, you're surviving. Share and let people know you're still here. I'm still here!
3
9
29
10 years ago, right about now, I was still having a 9-hour surgery removing the
#NeuroendocrineCancer
primary. Read my story here
1
5
28
11 years ago, right about now, I was staring up at an anaesthetist who knocked me out for 9 hours. I'm still here.
#WorldNeuroendocrineCancerDay
#ImStillHere
#NeuroendocrineCancer
0
4
28
A 5 mile walk to celebrate 10 years since I was discharged from hospital after surgery to remove a primary
#neuroendocrinecancer
I'm still here
#exercise
1
3
27
Happy new year and hoping all my followers have a better 2021!
4
5
27
Proud to announce my appointment to the 2019
@WEGOHealth
Patient Leader Advisory Board
#NeuroendocrineCancer
representative
5
11
26
Neuroendocrine Neoplasms - not as rare as you think -
#NeuroendocrineCancer
do the math not the myth
1
13
25
BREAKING NEWS 24 AUG 2023. Exelixis Announces Remarkable Efficacy in CABINET Trial (Cabozantinib) for Advanced Neuroendocrine Tumors and the trial has completed earlier than planned.
#neuroendocrinecancer
2
14
26
New drug trialled in UK found to stabilise 90% of type of cancerous tumours
#NeuroendocrineCancer
featuring
@UHSFT
@PLANETSCHARITY
@laylaPLANETSCh1
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5
27
This needs more emphasis. I've been receiving palliative care for 6 years.
#WaronCancer
thanks
@Maherjane
1
17
25
That's my first
#vaccine
done - no problems whatsoever. Great to see so many
#NeuroendocrineCancer
patients stepping up.
(only disappointment is having smaller guns than
@marklewismd
)
1
2
26
Merry Christmas to all my followers and to those on my
#FF
lists over the last 12 months, thanks for the particularly close support here and elsewhere, it means a lot
Picture Credit:
1
2
23
"The voice of the patient is very important" Martin Caplin, 9 March 2018
#ENETS18
#ENETS2018
1
16
23
I lost my talented, fun-loving friend to a cancer we’d never heard of – this is what she’d want you to know’
#NeuroendocrineCancer
@tweetingtonia
via
@MetroUK
1
11
25
#Histotripsy
: A new technique which destroys
#cancer
using soundwaves (now in Clinical Trials)
2
11
23
@tim_cook
RIP
#SteveJobs
taken by
#neuroendocrinecancer
5 Oct 11. A very underfunded disease. Great if you would RT to remember Steve today?
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26
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2
25
10 years since liver surgery, a 10 mile walk seemed apt. Follow on treatment included these views
#NeuroendocrineCancer
#Walk1000miles
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24
Lung NETs. A culture of miniature Neuroendocrine tumours indicates some of these types of tumours may be treatable using inhibitors of EGF receptor (already a course of treatment for other types of tumours). More research is needed.
@kateNCUK
2
17
24
#ThrowbackThursday
2 years ago today during Covid-19, I went to London for my Ga68 PET, it was an interesting journey.
#London
themed mask came in handy. The walk back along the Thames to Victoria from Guys Cancer Centre was fantastic though.
#NeuroendocrineCancer
1
2
24
#FF
to all those supporting me in the last 7 days, am at my Tactical HQ with less tools so a single post to all! Thanks again from
#StormEvert
Cornwall
2
1
24
Neuroendocrine Neoplasms – Grade and Stage (incorporating WHO 2019 changes)
#NeuroendocrineCancer
0
11
24
#FF
thanks for support this week!
@09EA63
@FibroFlutters
@scrufton73
@ene3112
@grandma_hockey
@KateNCUK
@bjork5
@ITM_AG
@WinfieldOHara
@GeorgeG354
@HorganRoberta
@Michgonewild
@Keith_Australia
@marklewismd
@SunshineL
@nuriyildiz
@Alokdoctor
@HelpLeila
@jmbtwomey
@sunnyfla2
❤️🧡
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Steve Jobs – the most famous
#NeuroendocrineCancer
Ambassador we NEVER had
#LetsTalkAboutNETs
#NETCancerDay
@netcancerblog
#stevejobs
0
13
23
New Radiotracer Can Identify Nearly 30 Types of Cancer – SNMMI – 68Ga-FAPI PET/CT
#neuroendocrinecancer
@netcancerblog
2
8
22
Proud to be a finalist in the
@wegohealth
#HAAwards
in Best in Show
#blog
and Community.
@NETCancerBlog
#NeuroendocrineCancer
0
7
23
Today is
#WorldCancerDay
something I've been supporting for the last 5 years, great to see other patient organisations now join, it all helps to get
#NeuroendocrineCancer
out there if the message is right.
#WorldCancerDay2020
#IAmAndIWill
#WCD2020
0
12
23
Diagnosed metastatic
#neuroendocrinecancer
6 years ago, stable for 4 years ......... but I still need support -
1
16
21
#FF
thanks for your support in the last 7 days. Not the usual tagging this week, spending a few days in
#malvernhills
Have a good
#NewYearsEve
and best wishes for
#2022NewYear
2
2
21
The late
#IrrfanKhan
, who has appeared in Oscar-winning films such as
#SlumdogMillionaire
and
#LifeofPi
was honoured at the 93rd
#AcademyAwards2021
on Monday. He was also a
#NeuroendocrineCancer
patient (high grade). RIP
#Irrfan
, Namaste
#Irrfan
0
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2
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22
@SamCoatesSky
If you continue to ask ridiculous questions, I do hope
@SkyNews
will consider it a resignation issue
#pmlive
0
2
20
Alpha-emitter PRRT: Phase 1/2 Study of AlphaMedix™ in Adult Subjects With SSTR positive NET - read more on Ronny Allan - Living with
#NeuroendocrineCancer
0
10
23
Just arrived in Barcelona for
#ENETS18
and so pleased to tip over into HALF A MILLION views of my blog in the taxi en route to my hotel. I'm so thankful to all those who read and share my posts 💜
0
7
23
WRONG
@DrOz
-
#SteveJobs
and
#ArethaFranklin
had a
#NeuroendocrineCancer
with a primary in the pancreas. Misleading for
#pancreaticcacner
patients and is denying the correct level of attention to
#NeuroendocrineCancer
Pancreatic cancer is one of the deadliest diseases and has claimed the lives of Aretha Franklin and Steve Jobs. Tomorrow, we reveal the top three ways to cut down your risk now. Be sure to join us.
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In the war on
#NeuroendocrineCancer
, let’s not forget to win the battle for better quality of life – Ronny Allan – Living with Neuroendocrine Cancer
#LetsTalkAboutNETs
#NETCancerDay
@netcancerblog
0
12
20
True story, I woke up on
#WorldNeuroendocrineCancerDay
Please share my diagnostic story leading up to 10th November 2010
1
19
21
Proud to be an Independent
#NeuroendocrineCancer
Advocate and Voice via my award winning site at and associated
#socialmedia
channels. Thanks to my thousands of supporters worldwide - on course for 1,000,000 blog views
#LetsTalkAboutNETs
#NETCancerDay
0
10
20
I woke up on World Neuroendocrine Cancer Day Although every day is
#WorldNeuroenedocrineCancerDay
for me, this day is special as it has a personal meaning. Read more on Ronny Allan - Living with
#NeuroendocrineCancer
0
5
19
Very excited to be on the Strategic Advisory Board at
@MultimedInc
Inc A
#PatientsIncluded
organisation. Check out the rest of the team here
0
5
20
Pictures from my recent short break - On
#mentalhealthday
I really do think getting outdoors, walking/hiking, to see sights like this can help
#nationaltrust
#EveryoneNeedsNature
#MentalHealthAwarenessDay
1
4
20
Not all cancers are black, white, blue, pink – some are very grey
#WorldNeuroendocrineCancerDay
#NeuroendocrineCancer
0
6
21
#NeuroendocrineCancer
would love you to ignore this post. Don't let it win so please RT. via
#WEGOHealthChat
1
23
20
an interesting development if it can eventually brought to market - 177Lu-DOTA-LM3 – a novel radionuclide therapy proven safe and effective to treat neuroendocrine neoplasms (NEN)
#NeuroendocrineCancer
0
10
18
#WorldCancerDay2022
#closethecaregap
on
#NeuroendocrineCancer
– normally slow but always sneaky even on
#WorldCancerDay
0
7
20
0
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#FF
to all those who supported me so far in 2019. Much appreciated - average half a million retweet reach each week thanks to your support. Many thanks and to those who frequently retweet my posts, I'm really thankful (you know who you are).
#NeuroendocrineCancer
@NETCancerBlog
0
7
20
Neuroendocrine Tumours: a spotlight on
#Pheochromocytoma
and
#Paraganglioma
be sure to check out
@pheopara
and
@KnowPheoPara
who are doing a great job in
#PheoParaAwarenessWeek
1
9
18
On
#worldcancerday
, I'm proud to declare my ongoing fight against
#NeuroendocrineCancer
#NETcancer
#WeCanICan
2
15
20
#ClinicalTrial
: Lenvatinib Efficacy in Metastatic Neuroendocrine Tumors
#NeuroendocrineCancer
(TALENT)
@netcancerblog
1
10
19