Clinically Vulnerable Families ๐๐๐
@cv_cev
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๐๐ผ๐ฟ๐ฒ ๐ฃ๐ฎ๐ฟ๐๐ถ๐ฐ๐ถ๐ฝ๐ฎ๐ป๐ in the ๐จ๐ ๐๐ผ๐๐ถ๐ฑ-๐ญ๐ต ๐๐ป๐พ๐๐ถ๐ฟ๐ #FBCV (follow back CV) and JOIN us on FB โโ ๐ธcv_cev ๐ฆโ๏ธ @cvcev .bsky.social
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Pinned Tweet
Clinically Vulnerable Awareness Day
๐๐๐
#FreedomDay
July 19th ๐๐๐
Let's start raising awareness today!
Get involved by adding a frame to your profile picture.
Hereโs how to do it:
1. Download the border from this link:
๐งต
#NewProfilePic
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Does anyone else hear 'Ride out Omicron' and translate it to 'Let the bodies pile high'?
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๐จLiving with Covid - Schools๐จ
Imagine living in a high risk household.
Your child gets sick (most likely from school as they don't go anywhere else).
You inform the school they will be absent, telling them that they have a temperature (possibly Covid).
They send you this:
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@rachelwinchers
@sstroschein2
It is illegal to ask about health. You might want to challenge them more directly.
Clinically Vulnerable people are increasingly finding employers are discriminating against them and not offering remote work for those still at high risk from Covid.
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Hi
@BBCCasualty
, your recent episode will contribute to the discrimination faced by people who are Clinically Vulnerable to Covid.
It concerns a character called Aishling, a lady wearing an FFP2 mask, who had isolated herself for four years.
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Can we change the narrative here?
We need to use the word *PROTECTIONS*
not *RESTRICTIONS*.
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@Helen_Whately
We hope you will now take 'personal responsibility' for airborne infections and call the families of *all* those hospitalised and who die to justify why a "smile" was prioritised above the health of their loved ones.
NB/ A genuine smile can always be seen in the eyes.
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Boris is firmly on the ropes, as CTI Hugo Keith lines up blow after blow of evidence regarding
@BorisJohnson
's view that we (the vulnerable) were expendable.
Watch him shift in his seat.
*Next tweet for his response.
#CovidInquiry
#IncludeCVF
๐๐๐
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Their 'smiles' betray a lack of empathy for their vulnerable patients.
#MasksInHealthcare
๐ท
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We respectfully request that in way of an apology, the
@Telegraph
pays to build a memorial playground for the 110(+?) children lost to Covid.
โค + โป๏ธ if you agree
๐ด Only six healthy children with no underlying health conditions died as a direct result of catching the coronavirus during a 12-month window, NHS analysis has revealed
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@theAliceRoberts
The opposite of smoking carriages of old, we need masked carriages.
That way we can take more 'personal responsibility'.
#MaskedCarriages
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Dear
@BBCBreakfast
,
Please consider the implicit message when you send an unmasked* reporter into a care home where an as yet to be revaccinated, incredibly vulnerable population are eating.
*Especially in light of risks highlighted, seconds earlier, from new variants.
Thanks!
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Vaccines *don't* prevent Covid infections.
The patient is repeatedly reassured by staff that they are "๐ง๐ถ๐ญ๐ญ๐บ ๐ท๐ข๐ค๐ค๐ช๐ฏ๐ข๐ต๐ฆ๐ฅ".
This is misleading to viewers. Vaccines reduce the severity of the disease, they do NOT result in sterlising immunity.
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๐จ
#MasksInHealthcare
๐ท
Sign and share our petition now.
Protect staff and patients from airborne diseases * including Covid *.
#ProtectTheNHS
๐
#SaveLives
โค๏ธ
๐
๐
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@BorisJohnson
We respectfully request that since the Queen has been infected whilst current protections remain in place you defer your decision to withdraw them on Monday.
Also, all Clinically Vulnerable & elderly people must be offered antiviral treatments so they can live when infectedCovid.
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This scene perpetuates the myth that masks significantly limit breathing.
The episode misrepresents and undermines mask wearing generally, which is especially problematic for those at higher risk.
The public already don't support them!
#MaskAbuse
is a growing problem.
5/
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@AdamJSchwarz
it isn't like this scenario wasn't entirely predictable, it was simply a matter of where and when.
Why haven't we prepared? We have had almost 2 years to improve our pandemic planning.
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The BBCs minimising of Covid, mask wearing, and general misinformation only serves to increase the stigmatisation of this already marginalised group - who don't share the health privilege of the general population.
Would you target other minorities in this way?
12/
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At the
#CovidInquiryUK
Prof
@CathNoakes
explains how mitigations for
๐ฅ
#CovidIsAirborne
๐ฅ
puts the responsibility onto those who manage the indoor environment.
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We accept that masking may make others feel uncomfortable (due to their own hang-ups).
As in sexual harrassment, what someone else chooses to wear is nobody else's business.
Personal protective equipment enables people to manage risks - particularly in unsafe environments.
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We support everyone's right to wear a mask , if they choose to, and
#MasksInHealthcare
๐ท.
***
Please complain to the BBC:
Then complain to OFCOM:
Thank you ๐ + โป๏ธ
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Aishling's story ended with her taking a deep breath as she pulled off her mask, and will undoubtably contribute to gaslighting faced by Clinically Vulnerable people trying to access essential care safely. It may also influence medical staff.
#MasksInHealthcare
#CleanAir
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Casualty has failed to acknowledge any risks posed by Covid, especially from nosocomial infections in healthcare.
Many more people continue to die from Covid than 'flu. (HT
@jneill
)
~20 million people are Clinically Vulnerable to Covid. We remain at higher risk.
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โ ๏ธ Clinically Vulnerable people are struggling.
We are * 3๏ธโฃ YEARS * into a pandemic (ask the
@WHO
) and our needs have not been addressed.
Protections were withdrawn one by one and the removal of these measures has unfairly disadvantaged us.
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Wearing an FFP3 mask protects you against airborne pathogens and pollution. ๐ซ
This mask was worn to a performance of Macbeth ๐ญ.
Other people will have brought this muck home in their lungs, including the actors who will be exposed daily....
#WearAMask
๐ท
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Just seen this from
@LDNBikeKitchen
.
We can't thank you guys enough for making us feel safe and included. You are a rare find!
Please sign up to
@CovidPledge
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We fully support the
@covidinquiryuk
in its efforts to provide an inclusive environment with reasonable adjustments to allow even the most vulnerable people the opportunity to attend safely.
RT if you agree!
@blathhnaid
@Telegraph
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We believe this will contribute to the public's lack of empathy and understanding towards those who have health conditions, or other risk factors, which mean they remain at higher risk from Covid.
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The episode minimises legitimate anxieties and health concerns of people at higher risk from Covid by contrasting them unfavorably with other forms of trauma (as experienced by her doctor throughout the episode).
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Ultimate Freedom Day is forcing the most vulnerable into impossible situations.
How can we
#StaySafe
?
No testing. No isolating.
How can we judge our risks?
No ONS data, no government data.
How can we even access healthcare?
No masks.
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"How can you [.] not confirm that Covid is
airborne [.] & tell people that in order to protect themselves [.] they should wash their hands and take personal responsibility? [.]
There is an area of personal responsibility for all of us it used to be called 'Public Health'."
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This episode is littered with misconceptions, which will no doubt permeate the thinking of the casual viewing public:
"๐๐ฆ๐บ, ๐ฅ๐ฐ ๐บ๐ฐ๐ถ ๐ธ๐ข๐ฏ๐ต ๐ต๐ฐ ๐ต๐ข๐ฌ๐ฆ ๐บ๐ฐ๐ถ๐ณ ๐ฎ๐ข๐ด๐ฌ ๐ฐ๐ง๐ง? ๐๐ณ๐ฆ๐ข๐ต๐ฉ๐ฆ ๐ข ๐ญ๐ช๐ต๐ต๐ญ๐ฆ ๐ฆ๐ข๐ด๐ช๐ฆ๐ณ."
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๐ท Wearing a mask isn't our choice ๐ท
๐ท It is our necessity ๐ท
Laws that threaten our safety will silence our voice.
We MUST protect everyone's right to protest safely, not criminalise clinically vulnerable people.
#ProtectVulnerableProtesters
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@British_Airways
@British_Airways
we had hoped you would install
#HEPA
๐จ to clean the air on all of your planes and insist on
#BetterMasks
(FFP2 minimum) to protect Clinically Vulnerable lives.
Please reconsider this policy urgently.
We would like to fly with you again one day!
#CovidIsNotOver
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Closing Schools
๐ฅ"The fact is, that sadly, schools are a terrific reservoirs of the virus"
"They were going to be a big vector of transmission for *elderly* people"๐ฅ
Schools were not only unsafe but posed a risk - why only to the elderly???
#CovidInquiry
#IncludeCVF
๐๐๐
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"Do you think it is responsible to allow the
continued infection & reinfection of
childrn with a novel coronavirus that
is vascular that causes long-term sqlae
brain damage increases in childhood
diabetes & kidney issues along with a
whole range of other compounding
sequally?"
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We are delighted that the Houses of Parliament has seen the value in AND invested in
#CleanAir
๐จ.
We hope that everyone will have this right soon, in all workplaces, schools, healthcare and public places.
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Please show a 13 year old child that Twitter isn't all bad.
#IStandWithZach
Please get this trending!
Along with:
#vax4kids
&
#SafeSchools
๐๐๐๐ Thanks ๐๐๐๐
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Premier Rockliff, Tazmania, Australia faces difficult questions:
"Did you lead the charge with former New South Wales Premier Dominic peretet to remove five-day isolation knowing it would lead to an increase in infection re-infection disability and death?"
#LivingWithCovid
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@HeathrowAirport
@BirgitC
This isn't an issue with passenger "anxiety" but an issue with passenger *safety*.
Did you perform a risk assessment and an equality impact assessment for this change
@HeathrowAirport
? If so, please do share them.
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And so it was that 'smile' would be added to our ever growing list of toxic words and phrases.
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@drseanmullen
@ThisWeekABC
Also
@drseanmullen
, don't forget the Clinically Vulnerable teachers / teachers from Clinically Vulnerable households who have been been effectively excluded from unsafe classrooms had to resign.
Air filteration is essential to make classrooms accessible to us.
@CleanAirClassrm
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This is a shocking tweet.
It minimises the threat posed to life by Covid-19. Especially concerning coming from a medical doctor who is a position of trust and the ability to influence.
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@trishgreenhalgh
Why aren't we negotiating bulk contracts rather than each school scrapping to get what they can?
Schools can't afford gluesticks (genuinely) what makes the government think they can afford 2 of these for each classroom?
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We need to send an *urgent* message.
Can you help to get
#MasksInSchool
trending?
โค + โป๏ธ + Tweet it. Thanks!
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Episode 4 - 'Trauma'
Aishling's "Covid anxiety" had resulted in her overdosing on anxiety medication and being unable to drive.
To assist this narrative, she was completely healthy and, therefore, clearly portrayed as a bit mad.
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@SGriffin_Lab
Running out of words...
If true, this is is a shocking breach of patient trust. Testing is a critical measure to protect vulnerable lives.
We need safe healthcare. ๐
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๐ขThe Royal College of Emergency Medicine supports infection control measures being reinstated for Covid-19.
Please demand Clean Air๐จ
@RCollEM
#ProtectLives
๐
#ProtectHealth
๐ท
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โ ๏ธ Please take a moment and consider the lengths to which Clinically Vulnerable people are going to take 'personal responsibility' to protect others.
#MasksInHealthcare
๐ท
@VictoriaAtkins
@wesstreeting
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๐จ Andrea was DENIED her vote when new
#VoterID
laws clashed with her health need to wear a mask.
Her experience highlights one of the new barriers faced by Clinically Vulnerable people.
#MyMaskMyVote
๐ท
๐งต/1
#MyMaskMyVote
Not allowed to vote once inside, despite bringing ID & video of me putting on mask, as no options for reasonable adjustments for those who are
#immunosuppressed
. Recorded as turned away with reason: no guidance for those with Disability.
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Have you ever been asked to remove your mask in healthcare?
This CVF member from our FB was asked to, but it took an unexpected turn...
#MasksInHealthcare
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You all know someone Vulnerable.
You all love someone Vulnerable.
Please help us... many of us simply won't survive without your help.
Please ๐
#WearAMask
๐ท - thank you! x
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By the end of the episode, Aishling is seen pulling off her mask to speak (as if people in masks can't talk) and seemingly finding perspective as she realises the doctor suffered her own, far worse, Covid trauma.
More on this later...
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@educationgovuk
@NHSuk
This messaging is shameful and a child protection concern. It is promoting health discrimination.
Parents should *not* be urged to send children into school if they know they are sick in the morning.
Who approved this campaign?
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Your Royal Highness,
@RoyalFamily
To commemorate your coronation, please request that the 8M of public money ear marked for pictures in schools is diverted to funding
#CleanAir
(air filtration) for schools.
50,000 classrooms could benefit
(1.5M+ children & staff).
Thank you!
Clean air is needed in every classroom.
๐ To protect children
๐ To protect staff
๐ To protect communities
Lives and futures are at risk ๐
Thank you
@itvnews
@LongCovidKids
@LibDemPatrick
@SmartairUk
and all of the schools and families involved.
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@ReicherStephen
Unfortunately a minor imposition for others is taking away considerable freedoms for the vulnerable.
Many of our members spent yesterday in tears. The mental health burden of facing a threat to life with vaccines waning is considerable.
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Lateral flow tests can be have a very faint line.
* This test is positive *
(Confirmed by PCR)
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We are delighted to announce
Clinically Vulnerable Families ๐๐๐
have been designated as Core Participants in the
@covidinquiryuk
.
We hope to assist the inquiry by sharing our combined knowledge and experience to urgently identify lessons learned.
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๐ข "LIVING WITH COVID"
ignored our fundamental needs.
2 years on, we urgently need to LEARN.
Even if you feel you can't join our ๐บ๐ฎ๐๐ธ๐ฒ๐ฑ ๐ฝ๐ฟ๐ผ๐๐ฒ๐๐, please show your support online.
Use
#CleanAir
and
#Breathtaking
to raise our voice ๐ช
๐งต
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For those who don't know:
Zach spoke out to
@IndependentSage
on Friday regarding his fears as a clinically vulnerable child in an unsafe school environment without mitigations.
Since then he has suffered torrents of abuse from adults on Twitter.
13 year old
@ZachZachadoodle
tells
#IndependentSAGE
about his mental health struggles brought on by the lack of safety from coronavirus in schools.
"I feel nothing but despair."
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Lee-Anne, who has a Clinically Vulnerable family, has just spoken to
@carolvorders
about her experience - as her child was off-rolled (which is an illegal practice) rather than offering him a safe learning environment.
This is discrimination - education is a human right.
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#CovidIsAirborne
Masks filter the air.
Maybe we won't fancy whatever infections you are brewing in your lungs?
#WearAMask
is basic respiratory hygiene.
We are not anxious - such comments say more about your feelings than ours.
Why are doctors telling those in masks they donโt need to worry about Covid because they have been vaccinated and they are instead anxious?
It is a patientโs choice and if they ask you politely if you would wear one perhaps consider it, instead of giving a personal opinion.
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Glyn is a high risk transplant patient with asthma and COPD, she is worried about access to healthcare.
"I need an operation soon, but I can't go into hospital"
"There is no masking, testing or air purifiers"
Are you listening UKHSA?
#IncludeCVF
๐๐๐ย
#CovidInquiry
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Wow! The LA children's hospital has infection prevention and control measures to protect their vulnerable patients from airborne infections.
Seeing role models sporting N95 (FFP2) masks, such as the Duchess of Sussex, is so vital for these young people.
Meghan Markle visited Children's Hospital Los Angeles to support their Make March Matter fundraising campaign. Patients and staff were treated to a very special story time with the Duchess of Sussex! โค๏ธ
๐ท:
@ChildrensLA
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@HelenRSalisbury
This family kept them home, however unapproved absences are an immense stress to a CEV household. How can they feel safe in school when attendance is prioritised before health?
The affect on illness in the school and wider community a hazard to public health.
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Should we have acted on the precautionary principle prior to APRIL 2020 when it was established that
#COVIDisAirborne
?
We still aren't doing so now!
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@SchoolsWeek
For 3.6M, ~22,500 air filters could have been bought protecting ~700,000 children.
๐ Some in our families paid with their lives
๐ Some of our children paid with their futures
๐ Schools *still* aren't safe
We need
#educationANDlives
- both are human rights.
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OPEN LETTER to
@nadhimzahawi
On behalf of
Clinically Vulnerable Families UK
Response to:
Letter to School Leaders
AND
Letter to CEs of LEAs
Making attendance 'a top priority' in a Pandemic.
We want
#educationANDlives
Pls RT๐
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"Who do we not save?"
It is pretty clear that this is *the* plan going forward.
#CovidIsNotOver
#PlanB
Ultimate Freedom Day is forcing the most vulnerable into impossible situations.
How can we
#StaySafe
?
No testing. No isolating.
How can we judge our risks?
No ONS data, no government data.
How can we even access healthcare?
No masks.
1/
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670
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Hi
We are Lara (R) and Cathy (L) from England.
We know that
#CovidIsNotOver
which is why
@cv_cev
are Core Participants in the UK Covid Inquiry.
We do not accept mass infection, disability & death from Covid. We continue to mask.
Pls sign & share our petition
#MasksInHealthcare
๐จ
#MasksInHealthcare
๐ท
Sign and share our petition now.
Protect staff and patients from airborne diseases * including Covid *.
#ProtectTheNHS
๐
#SaveLives
โค๏ธ
๐
๐
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๐คง Encouraging children to attend school sick puts the lives and health of clinically vulnerable people at risk.
๐ง๐ต๐ถ๐ ๐ถ๐ ๐ฑ๐ถ๐๐ฐ๐ฟ๐ถ๐บ๐ถ๐ป๐ฎ๐๐ถ๐ผ๐ป ๐ฎ๐ป๐ฑ ๐๐ต๐ฟ๐ฒ๐ฎ๐๐ฒ๐ป๐ ๐ผ๐๐ฟ ๐๐๐บ๐ฎ๐ป ๐ฅ๐ถ๐ด๐ต๐๐.
#CVLivesMatter
โ๏ธ
@LibDemPatrick
My liver transplant son I told you about is off for a whole week now, because kids are allowed in school ill. He's got chicken pox and is on IV antivirals. It will be us that get the grief when the attendance figures come in though.
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๐จWARNING :
Old bivalent vaccines were given to the MOST vulnerable population when a summer surge triggered an early start to the autumn vaccine campaign, before the newer XBB vaccines were available.
1/
Dear
@BBCBreakfast
,
Please consider the implicit message when you send an unmasked* reporter into a care home where an as yet to be revaccinated, incredibly vulnerable population are eating.
*Especially in light of risks highlighted, seconds earlier, from new variants.
Thanks!
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Wow!
โ ๏ธ
#MasksInHealthcare
petition update
Well done to the Petitions Committee! We fully agree with their view, and would also like to see any scientific evidence behind the decison-making.
โฌ๏ธโฌ๏ธโฌ๏ธ
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1/ Children need to wear masks in school. Because:
๐ท It is a simple measure which can save lives.
๐ท Children do catch and spread Covid.
๐ท Symptoms of Long Covid are serious and may have implications for our Nation's health for decades.
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๐จ Why is it government guidance for very high-risk young people to mix with known C0V|D+?
It must not be dismissed as 'anxieties'. It is a genuine risk to physical health.
Expert advice appreciated ๐ PLEASE ๐
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URGENT UPDATE:
One of the CEV children from our group has been infected via unsafe schools.
Only one lung.
No words...
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๐จ A new version of * Evusheld * (AZD2152), synthetic antibodies for high-risk immunocompromised people, is being made available under "compassionate access" in France ๐ซ๐ท to protect people in this latest wave.
What is your excuse
@UKHSA
? EU red tape...?
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๐จLiving with Covid - Not Testing Kids๐จ
How can it be okay to tell a symptomatic child who was exposed to a known Covid case NOT to test?
Why would an attendance officer laugh at a concerned parent from a vulnerable household?
This is the level of dismissal we are facing...
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@GavinWilliamson
"Transformational reforms" include threatening Clinically Vulnerable households because "all children must be in school" or face Fines, Prosecution and Social Services.
"Life opportunities" have been seriously curtailed for those who lost theirs/education due to unsafe schools.
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๐จREAD THIS THREAD
(it was a tough write)
Clinically Vulnerable Families were rejected from M2
#CovidInquiry
as our interests are not "sufficiently significant".
Yet, most reported deaths were followed by dismissive "underlying health condition" / "elderly".
#IncludeCVF
๐๐๐
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Living with Covid
๐ No vaccines (majority)
๐ No masks
๐ No respiratory hygiene
๐ No testing / tracing
๐ No isolation
๐ No data
๐ No simple page of NHS guidance for vulnerable
๐ No ventilation
๐ No public health
๐ No leadership
What did we LEARN?
Nothing!
SAVE US ๐
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98% of Clinically Vulnerable people told us that they feel ๐ช๐ฃ๐จ๐๐๐ in healthcare.
Covid is here to stay.
Learning to live with it must not mean the removal of all protective measures.
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๐จ Listen carefully for the "bleep" ๐จ
The inquiry COโ monitor is going off today in the packed hearing room.
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@YouAreLobbyLud
Personal preferences should never come before patient safety.
Disregarding risks to vulnerable patients is unacceptable. Masks are a crucial tool for reducing / preventing transmission.
#MasksInHealthcare
๐ท
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Does anyone fancy writing a complaint to the BBC?
You don't even need to be an immunologist, but it might help on this occasion.
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Covering your mouth and nose with an FFP2/3 respirator mask is one of the easiest ways to protect yourself and others from viruses like 'flu and COVID-19 - and it helps to reduce pressures on healthcare services.
#MasksInHealthcare
๐ท
@NHSEngland
please clean the air!
Washing your hands with soap and water is one of the easiest ways to protect yourself and others from viruses like norovirus, flu and COVID-19 - and it helps reduce pressures on healthcare services.
โก๏ธ
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๐จ Mask wearing became heavily politicised even before it was common practice in 2020.
Now, we are finding that even high-risk people face discrimination despite relying on masks as an essential measure to protect health.
1/๐งต
#MaskDiscrimination
โฌ๏ธโฌ๏ธโฌ๏ธ
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Advice given to an 80yo, who qualifies for antivirals and has just tested Covid positive, by a GPs receptionist:
"I have spoken to the surgery, she said 'Just rest at home, you donโt need any medication.' " ๐คฏ
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โ ๏ธ Covid vaccine access likely to reduce from Autumn 2024 โ ๏ธ
๐ง๐๐๐ฅ : Potentially bad news for "such groups as ๐ต๐ฒ๐ฎ๐น๐๐ต๐ฐ๐ฎ๐ฟ๐ฒ ๐๐ผ๐ฟ๐ธ๐ฒ๐ฟ๐ and ๐ต๐ผ๐๐๐ฒ๐ต๐ผ๐น๐ฑ ๐ฐ๐ผ๐ป๐๐ฎ๐ฐ๐๐ ๐ผ๐ณ ๐ถ๐บ๐บ๐๐ป๐ผ๐๐๐ฝ๐ฝ๐ฟ๐ฒ๐๐๐ฒ๐ฑ ๐ถ๐ป๐ฑ๐ถ๐๐ถ๐ฑ๐๐ฎ๐น๐.
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"You've just got to 'Learn to Live' with it"
is probably one of the most damaging comments you can make to a Vulnerable person.
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๐จLiving with Covid๐จ means enabling such high prevalence that we *ALL* catch it.
Special thanks
@BorisJohnson
and
@sajidjavid
, quite a legacy...
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๐งตA letter, signed by Prof Jennifer Harries OBE, has informed parents of Clinically Extremely Vulnerable children that they are not CEV anymore.
Even being identified as needing a vaccine isn't a reason to shield.
NB/ Many (12-15) have still not received a first dose yet. 1/
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Awful news about the loss of
@kategarraway
's husband,
@derekdraper
.
He was infected with Covid in March 2020 and sustained significant organ damage which led to further complications.
Our thoughts are with his family. ๐
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By branding masks as a "restriction" the government undermined what was, and is, a great enabler for many CV families as a "protection".
The best thing we did as a family for our son during cancer treatment was wear a mask in public indoor places.
During that 18 month journey he had zero externally caused illnesses.
#MasksWork
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๐จNo Covid testing = No Covid ?
How is it in the interest of a Clinically Vulnerable patient to deny them a Covid test that could affect their access to vital treatments?
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๐๐๐๐๐๐๐๐๐๐๐๐๐๐
#CleanAir
๐จ in 200 London schools
@SadiqKhan
@MayorofLondon
is making schools safe - something the DfE has failed to achieve!
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